2017 Summer Happenings

We took it easy this summer on Cape Cod! Ha ha- just kidding- do you know my Mom? There is no "taking it easy" with her! Even though we didn't take many trips off Cape, we certainly kept busy around Chatham!

I enjoyed riding on my adaptive car- until the battery decided to give out. Hopefully we can get a new one soon!

I got to swing on the new adaptive swing at the Community Center- until the straps were taken off :-(

We went to visit the Pilgrim Monument in PTown...but

I didn't get to climb it. Luckily my brother didn't want to go up- so he hung out with me.

We went to the Chatham 4th of July Parade with our neighbors!

Mom and Me watching the parade

Of course we spent LOTS of time at the beach!

We went to the Kidz Bop Concert at the Melody Tent- holy cow it was AWESOME!

My mom, brother, and sister went to the concert!

Here I am- Mom and I got Rock Star seats! (Wheelchair perk;-)

My grandma, auntie and cousin came and we went to the Chatham Band Concert!

I even got to help my brother and Dad do DUMP DUTY! We have to separate all the bottles and cans. It's really gross. I supervise.

I got to be a Ninja at Liam's birthday party!

Beach time with friends

Hot Tub time with friends

Adaptive Cycling with Mom

Is that a cool set up or what?!?

 Of course my most fun time of the summer is going to Camp Jabberwocky for family camp. Camp Jabberwocky is on Martha's Vineyard and is an amazing camp for kids with disabilities. We have SO much fun! Here is a glimpse!

Our cabin: Slithy Toves

A visit from some alpacas

Adaptive rock climbing

I got pulled way up high!

It was so fun to be hanging in the air.

Meditation with a Sound Bath (all kinds of sounds)

Riding a raft in the ocean with friends

Relaxing in our beach holes with Dad

Riding on a huge Catamaran with Mom and Dad

It was a perfect day for a boat ride

Spending time with my camp friend, Maeve

 So what do you think..."taking it easy" summer?

Hot Wheels!

This must be the year of the wheel- because they keep coming my way! At the end of last year I got a new wheel chair and a new handicapped accessible vehicle- practical wheels, but ones I use every day. Now here we are in June and I have received more wheels! But these are different because they are FUN WHEELS! 

The first set of fun wheels I got was from an organization called JJ's Toys for Friends.  They make amazing adaptive equipment for people like me in memory of their son JJ. They gave me a new jogging stroller that can turn into a bike trailer, AND it also has pop on beach wheels! We have been waiting for something like this for a long time. 

Here I am attached to my mom's bike

Here I am at the beach with the big wheels

I can't wait to use these fun wheels all summer long! My family likes to go on bike rides and to the beach, so it will get lots of use. Just wait until you see the next set of wheels...

A special group at the University of Rhode Island, called Lil' Rhody Riders, created an adaptive ride on car for me.  It is a collaborative project between the physical therapy and engineering departments. It is so amazing! I can push a button and make it go all by myself! Or we can switch modes and my mom or dad can drive me with a remote control. It is going to be so fun riding around my neighborhood this summer!

This is going to be a great summer! Thanks so much to JJ's Toys for Friends and Lil' Rhody Riders!!

Thank You Make A Wish Foundation!

I just got the most amazing gift from Make A Wish Foundation of Massachusetts and Rhode Island- a trip to Disney World! This was not just any trip- but the most incredible vacation ever! Let me show you why it was so great!

First, we got picked up by this awesome limo! I have never been in a limo before- but it was so cool. 

Our Limo!

At the Airport- ready for Mickey

 

When we got to Florida we went straight to Give Kids the World Village. This is a magical place that is only available to kids getting a wish. We had a little house in the village and we ate in the "Town Hall" for our meals. They had a boundless playground that I could go on with my wheelchair. They even had rides that I could go on in my wheelchair too! There was an arcade where you could play all the games you wanted without having to pay! Mayor Clayton and Miss Mary were the village characters that we played with all week- there were shows and parties every night. They even came and tucked me into bed on my first night! 

Our Villa at GKTW

The Carousel at GKTW could hold my wheelchair!

Inside the Beehive in the Castle of Miracles

Mayor Clayton and Miss Marry in Town Hall

At the evening party at GKTW

All of us dancing and having fun!

Riding a pony at GKTW

Wheelchair Swing!

Butterfly Ride at GKTW

Train ride at GKTW

There was a fun pool with a splash park too. I didn't really like the splashing though. The Castle of Miracles is a magical place where I got to put my star on the wall. There are over 154,000 stars inside the castle. In the castle there is also a special tree that has a squirrel in it named Buttons- he made me and my brother and sister each a special pillow. 

Making our pillows with Buttons

Mom and Me in the Pool

Photo Op at the Pool!

My Pirate Face paint at the GKTW Spa

The craziest thing about Give Kids the World was the Ice Cream Palace that was open all day long and we could get whatever we wanted!! We had so much fun there. We also went to the Magic Kingdom and Universal Studios.

I really loved the water rides at the parks the best. I got to go on lots of rides and see characters too. 

Cinderella and Me

Meeting Mickey

Meeting Goofy

Hello Magic Kingdom!

Riding on the Magic Carpets

I really loved Harry Potter World at Universal. We got a special wand that let us move things in the store windows with special spells. I got to taste some Butterbeer too!

Hogwarts at Universal Studios

Playing carnival games at Universal

I won a Minion!

Here I am at Universal in the crazy nerf ball zone!

 

On our last night we went to Epcot and stayed for the fireworks. We were so close! We also ate at a fun restaurant in Morocco. It was called Marrakesh and they even had belly dancers!

My Family at Epcot

Amazing Fireworks at Epcot!

Fun in the Countries at Epcot

Liam helping me dance with the belly dancer

Lion King!

Belly Dancer at Mararkkesh

We were sad to leave, but we will always have so many great memories of this trip.